What the FOI Actually Shows | Fair Autism & Disability Funding BC
FAIR AUTISM & DISABILITY FUNDING BC
FOI FILE · CAF-2026-052705
Records Release

What the Ministry's "Confidential Consultations" list actually shows

We asked MCFD for every organization and advocate consulted on the new CYSN funding model since November 2022. What came back was one page, starting in February 2025 — and it doesn't match what several people on it say happened.

Fair Autism & Disability Funding BC · Advocacy Lead, Sara Lindberg
July 27, 2026

On April 23rd, 2026, we submitted an FOI request to the Ministry of Children and Family Development asking for "a list of any and all organizations or advocates that provided direct consultation on the new CYSN Funding model," between November 1, 2022, to April 22, 2026. What we received back was a single page document titled "Confidential Consultations on CYSN Redesign Model, February 2025 to April 2026."

The list of names included the organization people were affiliated with, as well as whether they signed an NDA.

But, it's not the whole story.

The RecordThe document, in full

Below is the complete list as released to us, with no redactions.

Confidential Consultations on CYSN Redesign Model

February 2025 to April 2026

OrganizationAffiliationIndividualsSigned NDA
Parents and ProfessionalsAdvocatesCathy NashYes
Jennifer NewbyYes
Louise WittYes
Rozann PedersonYes
Dr. Suzanne LewisYes
Dr. Glen DaviesYes
BC Clinical ExpertsProfessionalsDr. Suzanne LewisYes
Dr. Glen DaviesYes
Robin FriedlanderYes
Dr. Anamaria RichardsonYes
Katie AllenYes
AcademicAdvocateDr. Pat MirendaNo
Down Syndrome BCAdvocatesTamara TagartYes
Rebecca RubensteinNo
BC Association for Child Development and Intervention (BCACDI)Service Provider AdvocateDenise WatsonYes
BC Centre for AbilityService ProviderJoshua MyersYes
FNLC Secretariat StaffAdvocatesAndrea Glickman
Representative for Children and YouthAdvocateDr. Jennifer Charlesworth
Autism BCAdvocateSuzanne PerraultYes
BC Families of Complex KidsAdvocateBrenda LenhanYes
IndividualSigned NDA

Parents and Professionals

Advocates
  • Cathy NashYes
  • Jennifer NewbyYes
  • Louise WittYes
  • Rozann PedersonYes
  • Dr. Suzanne LewisYes
  • Dr. Glen DaviesYes

BC Clinical Experts

Professionals
  • Dr. Suzanne LewisYes
  • Dr. Glen DaviesYes
  • Robin FriedlanderYes
  • Dr. Anamaria RichardsonYes
  • Katie AllenYes

Academic

Advocate
  • Dr. Pat MirendaNo

Down Syndrome BC

Advocates
  • Tamara TagartYes
  • Rebecca RubensteinNo

BC Association for Child Development and Intervention (BCACDI)

Service Provider Advocate
  • Denise WatsonYes

BC Centre for Ability

Service Provider
  • Joshua MyersYes

FNLC Secretariat Staff

Advocates
  • Andrea Glickman

Representative for Children and Youth

Advocate
  • Dr. Jennifer Charlesworth

Autism BC

Advocate
  • Suzanne PerraultYes

BC Families of Complex Kids

Advocate
  • Brenda LenhanYes
CAF-2026-052705 · Page 1 of 1
View the original PDF release →

The GapPeople on the list tell a different story

One person on the list says they were not consulted at all: consultation meetings were cancelled and never rescheduled. Feedback was given AFTER the redesign was announced. Incomplete documents were sent the night before the redesign announcement. Does this sound like consultation?

Dr. Pat Mirenda, Chair of the BCDC, is another person on the list, under the category "Academic." Dr. Mirenda clarified in a statement:

"Prior to February 2026, in my capacity as Chair of the BC Disability Collaborative (BCDC), I repeatedly contacted MCFD representatives to request the summary of engagement reports that was promised in December 2024. I was also consulted via email and Zoom on assessing individual child and youth needs under the new CYSN framework. I was presented with various draft approaches, all of which I rejected as inequitable, overly restrictive, and burdensome to families. After the framework was released, I met with Minister Wickens and other MCFD representatives, again in my role as Chair of the BCDC, to address the many concerns arising from the new model and to advocate for a broader approach to needs assessment." — Dr. Pat Mirenda, Chair, BC Disability Collaborative

What We ConfirmedReaching out to the names on the list

Others on the list may have had similar experiences, and we emailed all but two people whose contact was not publicly listed anywhere. However, because NDAs were signed, people on this list may be trying to figure out what they can say publicly, or may not be able to speak out at all.

What BCACDI told us: We did hear back from BCACDI confirming that Denise Watson was consulted, and signed an NDA, and is no longer in the role of advocate as of June 1st. BCACDI was unable to provide any additional information or background on the consultation.

The OmissionAt least one consultant is missing from the record

Additionally, we know at least one other person was consulted, but is not on that list: Public contract records show Jennifer Engle was retained to review "autism and/or psychoeducational assessments, providing interpretations, clinical expertise and advice to the province" between April 2023 and March 31, 2027 (the end of the Autism Funding Unit and School Aged Extended Therapy through the At Home Program).

Who Isn't HereNotably absent voices

You also may notice limited representation on this list: what about advocates and organizations representing the Métis, FASD, ADHD, Deaf-Blind and other disability communities? Were they not consulted?

The Timeline ProblemWhy does the record start in 2025?

As for the dates, why does the document we received start February 2025, when the request was consultations dating back to November 2022? Is February 2025 when consultation for the CYSN funding redesign began? Was there no consultation prior to this?

We wrote an email to Minister Jodie Wickens, Assistant Deputy Minister Emily Horton, as well as MCFD staff and media contacts asking for clarification on how MCFD consulted with the people on this list, as well as why the date begins in 2025, and why there may be names missing. As of today, we have not received an answer back. Likewise, we asked for the government FOI Analyst handling this request to double check with MCFD that this is a complete record. We will update if and when we receive answers.

Read the DocumentsCorrespondence in full

Letter to Minister Wickens and MCFD Sent July 2026

Dear Minister Wickens, Assistant Deputy Minister Horton, and Ministry of Children and Family Development staff, I am writing with some follow-up questions to a document I received in response to the FOI request CAF-2026-052705. My request was for "a list of any and all organizations or advocates that provided direct consultation on the new CYS Funding model." I have attached the received document in this email. My first concern is that the document I received, titled Confidential Consultations on CYSN Redesign Model, February 2025 to April 2026, includes people who were not consulted on the new funding model. Could you please clarify in what way MCFD consulted with the names on this document, and when? Additionally, I believe there are names missing from this list, as others have spoken about consulting yet are not included. Second, could you please clarify why I was only provided a list from February 2025 to April 2026 when I requested November 1, 2022 through April 2026? Is this when consultation began, or was there no previous consultation? Thank you kindly for your response. I want to be transparent in that I intend to write about this record by the end of this week.

Regards,
Sara Lindberg
Advocacy Lead, Fair Autism & Disability Funding BC · fairfundingbc.ca

Reply from BCACDI Received

Hello Sara, Thank you for your inquiry. Denise Watson has recently left the role of Advocate with BCACDI. I am now in the role, as of June 1st. I can confirm that Denise, representing BCACDI, was consulted and a NDA was signed, per your screenshot below. I'm unable to provide any further background.

Best,
Dr. Terra Johnston, PhD, MSW, RSW
Provincial Advocate, BC Association for Child Development and Intervention

Sample letter sent to individuals named in the record Template

Dear [Name], I'm writing because your name appears in a Ministry of Children and Family Development record we obtained through an FOI. It is set to be published publicly through FOI disclosure laws, and I thought you should know before it happens rather than after. On July 13, 2026, MCFD released a record to me under FOIPPA (request CAF-2026-052705) in response to a request for a list of organizations and advocates that provided direct consultation on the new CYSN funding model. The record lists you as a Service Provider Advocate, and includes a column indicating whether each person signed a non-disclosure agreement. The record was disclosed in full, with no redactions, and MCFD's release letter states it will be posted on the BC Government's Open Information website a minimum of ten business days after release — so sometime after July 27, 2026, with all names visible. Before I write anything about this record, I want to be sure it's accurate. If you're willing, I'd be grateful to know whether you were in fact consulted, in what form, whether you were shown the model or asked for input on it, and whether you consider this record accurate. A note on the NDA column: I am not asking you to say anything that would breach an agreement you've signed, and I'm not in a position to advise you on what any such agreement covers. If you'd rather respond off the record, unnamed, or not at all, that will be respected — and I won't characterise silence.

Sara Lindberg
Advocacy Lead, Fair Autism & Disability Funding BC · fairfundingbc.ca

Were you consulted — or should you have been?

If you have information about how this consultation process actually worked, or your name should appear on this record and doesn't, we want to hear from you. Anonymity and off-record requests are respected.

Contact Us Confidentially

Fair Autism & Disability Funding BC · fairfundingbc.ca · This page will be updated as MCFD responds.