Page updated October 2026

Open letter · May 15, 2026

An open letter to the Ministry on the BC Disability Benefit assessment process

ToJodie Wickens, Minister of Children and Family Development
Emily Horton, Assistant Deputy Minister
David Eby, Premier
FromFair Autism & Disability Funding BC

Dear Minister Jodie Wickens, Assistant Deputy Minister Emily Horton, and Premier David Eby,

We are writing on behalf of families affected by the upcoming Disability Benefit assessment process. At the public meeting held on the morning of Tuesday, May 12, Assistant Deputy Minister Emily Horton advised that families will be contacted in the coming weeks and asked to submit assessments via a portal. While we have not yet seen the letter outlining the rationale for this request, we have serious concerns we need addressed before families are asked to act.

Our central concern is that the assessment criteria for admittance to the Disability Benefit have not been made public, nor have the criteria for determining who qualifies for the higher tier.

Before families submit sensitive documentation, we are asking for clear answers to the following:

  1. Will the documents families submit be used to design or refine the assessment criteria themselves?
  2. Why are additional assessments being requested when MCFD already holds copies of our children's diagnostic assessments?
  3. Will families receive a detailed written description of how their submissions will be used, stored, and shared?
  4. Is submission mandatory, and what are the consequences for families who choose not to submit?
  5. Will these assessments be used in any way to narrow eligibility or exclude children currently receiving supports?

Again, though we have not seen the full letter request, we are concerned families are being asked to make a significant decision on a short timeline without proper information. We ask that the Ministry publish the assessment criteria and a clear description of how submitted documents will be used before the portal opens, or at minimum before families are required to submit.

We would appreciate a written response at your earliest convenience, and welcome the opportunity to meet to discuss these concerns directly.

Sincerely,

Advocacy Leads
Fair Autism & Disability Funding BC

Copied to
  • Reann Gasper, MLA, Official Opposition Critic for Child Care and Children and Youth with Support Needs
  • Rob Botterell, MLA
  • Claire Rattée, MLA, Official Opposition Critic for Mental Health and Addictions
  • Autism Support Network
  • AutismBC

What has happened since

No written reply

The Ministry did not reply to this letter.

The Ministry published its eligibility criteria in June 2026 and updated them on August 14, 2026. The online form opened, and the Ministry's Commonly Asked Questions page now addresses most of the questions in our letter. Here is where each one stands as of October 2026.

1Will submitted documents be used to design or refine the criteria?Not answered

What the Ministry has said

The criteria "were developed with input from clinical experts and informed by research and evidence about childhood disability and support needs." The submission form says the information is collected "for the purpose of assessing eligibility for the BC Children and Youth Disability Benefit."

What's still missing

The Ministry hasn't said directly whether submissions will be used to adjust the criteria or the funding levels.

The form's privacy notice gives a broader legal basis than its stated purpose. It cites section 26(c)(e) of the Freedom of Information and Protection of Privacy Act. Section 26(c) covers information that "relates directly to and is necessary for a program or activity." Section 26(e) covers information that "is necessary for the purposes of planning or evaluating a program or activity of a public body." The Ministry's FAQ, which quotes the form's notice, cites only section 26(c). The Ministry hasn't explained why section 26(e) is on the form, or what planning or evaluation families' submissions will be used for.

2Why ask for assessments the Ministry already holds?Answered

What the Ministry has said

"The Disability Benefit is a new program with a new eligibility process." The Ministry says it "may not have enough information on file to assess eligibility for the Disability Benefit or determine the appropriate funding level." Families are not required to get new assessments, existing documents of any age are accepted, and families on Autism Funding can use up to $300 of it for copies of assessments.

3How will submissions be used, stored and shared?Answered, with a gap

What the Ministry has said

Information is collected under the Freedom of Information and Protection of Privacy Act and stored "on a secure government server." Files that don't clearly meet the direct admission criteria go to clinical experts, who must follow "all the same privacy, confidentiality, and information security requirements as Ministry staff." The Ministry says artificial intelligence (AI) won't make eligibility decisions.

What's still missing

Before families can submit, they must consent to disclosure "to any contracted third party for the purposes of determining my child or youth's eligibility." Those third parties haven't been named.

4Is submission mandatory?Answered

What the Ministry has said

"Submitting information through this process is voluntary." But for families who don't submit, the review "will occur after the end of the Autism Funding Program (March 31, 2027)." The Ministry also says forms sent after December 2026 may not be decided in time for April 1, 2027, which "could result in a gap before Disability Benefit funding begins."

5Will the information be used to set the bar for who qualifies?Not answered

What the Ministry has said

The criteria "were developed with input from clinical experts and informed by research and evidence about childhood disability and support needs." The submission form says information is collected "for the purpose of assessing eligibility." The Ministry has also said it expects about 80% of the families it currently serves to qualify for the Benefit, the Supplement or both, and that not everyone on Autism Funding will qualify for the Benefit.

What's still missing

The Ministry hasn't said whether the information families submit is being used to decide where the eligibility line falls. The form cites a legal authority to collect information for "planning or evaluating a program" (see question 1), which could cover that kind of use. The published criteria list eight areas of need with examples, but no threshold for how much need qualifies a child, and no criteria for the $17,000 level. Without a published bar, families can't tell whether it was set before submissions came in or is being set from them.

Read more in our plain-language guide to the eligibility criteria and our FAQ.

Sources